RESEARCHERS have for the first time calculated the lifetime cost of living with an inherited eye disease in Australia as $5.2 million per person.
Distressingly, a significant portion of the cost associated with the progressive loss of vision is absorbed by the individuals affected and their families, with over one-third of these costs being due to loss of individual and family income over their lifetime.
The findings have been published in The Medical Journal of Australia, where the study's authors broke down the reported lifetime cost of $5.2m per patient, as 87% being attributable to societal costs and 13% to healthcare costs.
In the adult cohort, only 62% were working, and notably, only 41% had National Disability Insurance Scheme.
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